Bailey Tomas has been through a lot in her four and a half years.
Born at 2 pounds, 2 ounces, she’s had one open-heart operation, faces another and — probably before she’s 10 – will need a new heart.
The Unadilla girl is a triplet, but on first glance it’s hard to identify her siblings. They are nearly a head taller and 20 pounds heavier.
Bailey was born with a hole in her heart and a blocked valve.
“They knew something was wrong as soon as she was born,” her mother, Bambi Tomas, said.
“The hole was so large and the murmur so big, you could see it on her chest.”
The defects required surgery at a Syracuse hospital when Bailey was just 7 months old, and the operation nearly killed the infant, who weighed a mere 7 pounds.
“They brought the priest in a couple of times,” her mom said.
Bambi Tomas said she tells Bailey’s sister, Hannah, and brother, Antonio, that “Bailey was born with a broken heart.”
“They know that she has to have an operation,” Bambi Tomas added. “They know that she’s already had one.”
The family found out in May that a transplant wasn’t just a possibility; it would be a necessity, Bambi Tomas said.
She said she asked the surgeon if he meant Bailey would need the operation around, say, age 30. His reply was chilling.
“We’re hoping to get her into early adolescence,” she quoted him as saying.
But before she gets to that point, Bailey is going to have one memorable week in Orlando, Fla., thanks to the Make-A-Wish Foundation of Central New York.
The organization, which grants the wishes of ailing children, chose Bailey — and the rest of her family — for a week at Give Kids the World, a “storybook” resort in Orlando built specifically for children like Bailey.